Exceptional Parent - August 2009 - (Page 4) D E PA RT M E N T S 6 ANCORA IMPARO ON FINDING YOURSELF DEPRESSED ABOUT BEING SAD BY RICK RADER, MD, EP EDITOR-IN-CHIEF EP EDITORIAL ADVISORY BOARD LAUREN AGORATUS, Parent, NJ state and MCH Region II (NJ, NY, PR, VI) Coordinator for Family Voices, NJ CCAN (Caregiver Community Action Network), National Family Caregivers Association, Mercerville, NJ MARK L. BATSHAW, MD, Prof. and Chairman, Dept. of Pediatrics, The George Washington Univ. Medical Center, Washington, DC ADRIENNE FALK BERGEN, PT, Seating and Wheeled Mobility Specialist, National Seating and Mobility, Westbury, NY TOM CHEETHAM, MD, Medical Director, Orange Grove Center, Chattanooga, TN ALLEN C. CROCKER, MD, Director, Developmental Evaluation Center, Children’s Hospital, Boston, MA MAHLON DELONG, MD, Chair, Dept. of Neurology, Emory Univ., Atlanta, GA MURRAY FEINGOLD, MD, Physician-in-Chief, National Birth Defects Center, Waltham, MA LAURA FITZELL, MSW, Social Worker, Valley Infant Developmental Service, Springfield, MA CHRIS FEUDTNER, MD, PhD, Pediatrician, Division of General Pediatrics, Children’s Hospital of Philadelphia–North, Philadelphia, PA EMMETT FRANCOEUR, MDCM, FRCPC, Past President, Canadian Pediatric Society, Ottawa, ON, CAN ARNO H. FRIED, MD, FACS, Director, Pediatric Neuroscience Institute, Hackensack University Medical Center, Hackensack, NJ KAREN GAFFNEY, Advocate, Speaker, President of the Karen Gaffney Foundation, Portland, OR STANLEY I. GREENSPAN, MD, Clinical Prof. of Psychiatry and Behavioral Pediatrics, The George Washington Univ. Medical School, Washington, DC JOAN EARLE HAHN, DNSc, RN, CS, CDDN, Assistant Adjunct Prof., Univ. of California, Los Angeles School of Nursing; Past President, Developmental Disabilities Nurses Association DAVID HIRSCH, MD, Phoenix Pediatrics, Phoenix, AZ HENRY HOOD, DMD, President, American Academy of Developmental Medicine and Dentistry; Director, University of Louisville School of Dentistry, Underwood and Lee Clinic, Louisville, KY JERRY HULICK, GA Emeritus, Massachusetts Mutual Life insurance Company, Special Care Planning CHRIS P. JOHNSON, MEd, MD, FAAP Associate Prof. Pediatrics, Univ. of Texas Health Science Center, San Antonio, TX BERNARD A. KROOKS, ESQ, Littman Krooks LLP, 655 Third Ave., New York, NY 10017 JOHN H. MENKES, MD, Director of Pediatric Neurology, Cedars Sinai Medical Center. Prof. Emeritus of Neurology and Pediatrics Univ. of California, Los Angeles, CA FRANK J. MURPHY, President and CEO, EP Foundation for Education, Atlanta, GA EDWARD NEWMAN, PhD, Prof., Temple Univ. School of Social Administration, Philadelphia, PA STEVEN P. PERLMAN, DDS, MScD, Associate Clinical Professor, Boston University School of Dentistry, Boston, MA HARVEY PRESSMAN, President, Corporation for Opportunity Expansion, Newton, MA SIEGFRIED M. PUESCHEL, MD, Parent, Prof. of Pediatrics, Brown Univ. School of Medicine, Providence, RI ESTHER SCHLEIFER, MSW, Clinical Social Worker, Boston, MA HOWARD SHANE, PhD, Director, Communications Enhancement Center, Children’s Hospital, Boston, MA ARTHUR SHAPIRO, EdD, Professor of Special Education, Kean University, Union, NJ MICHAEL D. SUSSMAN, MD, President, American Academy of Cerebral Palsy and Developmental Medicine, Shriner’s Hospital for Children, Portland, OR HELEN TAGER-FLUSBERG, PhD, Senior Scientist, Eunice Kennedy Shriver Ctr for Mental Retardation and Developmental Disabilities, Waltham, MA LAWRENCE T. TAFT, MD, Professor of Pediatrics, University of Medicine and Dentistry of NJ, Robert Wood Johnson Medical School, New Brunswick, NJ CAROL TINGEY, PhD, Parent, Psychologist, University of Utah Hospital, Salt Lake City, UT HAROLD TURNER, DDS, Editor Emeritus, Oral Health JO WALDRON, Parent, Disabled American for the Nation, Chief Operations Officer, New World Sounds, Inc., Fort Collins, CO LEE SHELLY WALLACE, MS, RD, LDN, FADA Chair, Dietetics in Developmental and Psychiatric Disorders (DDPD), a dietetic practice group of the American Dietetic Association. 10 WHAT’S HAPPENING 12 FURTHER READING MELANIE: BIRD WITH A BROKEN WING BY BETH HARRY REVIEW BY NANCY HENDERSON 14 NEW PRODUCTS 17 2009 DISABILITY AWARENESS NIGHT SCHEDULE 60 EP BOOKSTORE 62 SPECIAL NEEDS ALLIANCE TAXATION OF SPECIAL NEEDS TRUSTS – PART I BY DENNIS SANDOVAL 64 SPECIALCARE ARE YOU CARING FOR YOUR HUSBAND, WIFE, PARTNER WHO HAS SPECIAL NEEDS? OR LIFE 68 AADMD – AMERICAN ACADEMY OF DEVELOPMENTAL MEDICINE AND DENTISTRY PEOPLE WITH DISABILITIES ARE MEMBERS OF THE WORK FORCE LIKE EVERYONE ELSE…AND DESERVE THE POSITIVE BENEFITS THAT PROPER ORAL CARE MAY HAVE ON EMPLOYABILITY BY H. BARRY WALDMAN, DDS, MPH, PHD, AND STEVEN P. PERLMAN, DDS, MSCD, DHL (HON); PAULA S. JONES, DDS, FAGD; AND ALLEN WONG, DDS 71 ORGANIZATIONAL SPOTLIGHT TERI, INC., A CLASS ACT BY AMY ELIZABETH ALEXANDER 74 LIVING WITH A DISABILITY CHRONIC DISABILITY, MAJOR LIFE EVENTS, AND AGING BY JERRY LEVINSON NOTE FROM THE EDITOR-IN-CHIEF: ADVOCATES FOR THE DIGNITY OF ALL CITIZENS WITH DISABILITIES INCLUDING THE USE OF “PEOPLE FIRST LANGUAGE” WHERE POSSIBLE. WE DO NOT NORMALLY EDIT ARTICLES AND SUBMISSIONS THAT DO NOT REFLECT THIS LANGUAGE, THEREFORE, AT TIMES, READERS MIGHT SEE ALTERNATIVE NOMENCLATURE. —Rick Rader, MD EP EXCEPTIONAL PARENT neither endorses nor guarantees any of the products or services advertised in the magazine. 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Agreement # 1420542. 4 August 2009 • EP MAGAZINE/www.eparent.com http://www.eparent.com http://www.eparent.com Table of Contents for the Digital Edition of Exceptional Parent - August 2009 Exceptional Parent - August 2009 Contents Ancora Imparo What's Happening Further Reading New Products 2009 Disability Awareness Night Schedule 2009 Models of Excellence in the Healthcare Profession Preterm Birth: How It Affected My Family Treatment of Neurosensory Disorders Improves Psychological Well-Being in Children Federal Program Encourages Health Service Innovations on Developmental Disabilities Close Encounters of the Medical Kind Sitting on top of the World: One Physician's Journey to Success Raising a Noonan Syndrome Child When We Found Out Our Daughter Had CMT August is Spinal Muscular Atrophy Awareness Month! Newborn Screening Saves Babies, One Foot at a Time Another Day in the Life of the National Children's Study Evidence Based Humanity Must Be Part of the Equation Incontinence Education Series Part 7 Emergency Preparedness Series Part 4 On the Road to Recovery - Self-Deiscovery: The Crown Jewel of Psychotherapy Asperger Syndrome and the Difficulties of Diagnosing and Treating Related Conditions EP Bookstore Special Needs Alliance Specialcare AADMD - American Academy of Developmental Medicine and Dentistry Organizational Spotlight Living with a Disability Exceptional Parent - August 2009 Exceptional Parent - August 2009 - Exceptional Parent - August 2009 (Page Cover1) Exceptional Parent - August 2009 - Exceptional Parent - August 2009 (Page Cover2) Exceptional Parent - August 2009 - Exceptional Parent - August 2009 (Page 1) Exceptional Parent - August 2009 - Contents (Page 2) Exceptional Parent - August 2009 - Contents (Page 3) Exceptional Parent - August 2009 - Contents (Page 4) Exceptional Parent - August 2009 - Contents (Page 5) Exceptional Parent - August 2009 - Ancora Imparo (Page 6) Exceptional Parent - August 2009 - Ancora Imparo (Page 7) Exceptional Parent - August 2009 - Ancora Imparo (Page 8) Exceptional Parent - August 2009 - Ancora Imparo (Page 9) Exceptional Parent - August 2009 - What's Happening (Page 10) Exceptional Parent - August 2009 - What's Happening (Page 11) Exceptional Parent - August 2009 - Further Reading (Page 12) Exceptional Parent - August 2009 - Further Reading (Page 13) Exceptional Parent - August 2009 - New Products (Page 14) Exceptional Parent - August 2009 - New Products (Page 15) Exceptional Parent - August 2009 - New Products (Page 16) Exceptional Parent - August 2009 - 2009 Disability Awareness Night Schedule (Page 17) Exceptional Parent - August 2009 - 2009 Models of Excellence in the Healthcare Profession (Page 18) Exceptional Parent - August 2009 - 2009 Models of Excellence in the Healthcare Profession (Page 19) Exceptional Parent - August 2009 - Preterm Birth: How It Affected My Family (Page 20) Exceptional Parent - August 2009 - Preterm Birth: How It Affected My Family (Page 21) Exceptional Parent - August 2009 - Treatment of Neurosensory Disorders Improves Psychological Well-Being in Children (Page 22) Exceptional Parent - August 2009 - Treatment of Neurosensory Disorders Improves Psychological Well-Being in Children (Page 23) Exceptional Parent - August 2009 - Treatment of Neurosensory Disorders Improves Psychological Well-Being in Children (Page 24) Exceptional Parent - August 2009 - Treatment of Neurosensory Disorders Improves Psychological Well-Being in Children (Page 25) Exceptional Parent - August 2009 - Federal Program Encourages Health Service Innovations on Developmental Disabilities (Page 26) Exceptional Parent - August 2009 - Federal Program Encourages Health Service Innovations on Developmental Disabilities (Page 27) Exceptional Parent - August 2009 - Close Encounters of the Medical Kind (Page 28) Exceptional Parent - August 2009 - Close Encounters of the Medical Kind (Page 29) Exceptional Parent - August 2009 - Close Encounters of the Medical Kind (Page 30) Exceptional Parent - August 2009 - Close Encounters of the Medical Kind (Page 31) Exceptional Parent - August 2009 - Sitting on top of the World: One Physician's Journey to Success (Page 32) Exceptional Parent - August 2009 - Sitting on top of the World: One Physician's Journey to Success (Page 33) Exceptional Parent - August 2009 - Raising a Noonan Syndrome Child (Page 34) Exceptional Parent - August 2009 - Raising a Noonan Syndrome Child (Page 35) Exceptional Parent - August 2009 - When We Found Out Our Daughter Had CMT (Page 36) Exceptional Parent - August 2009 - When We Found Out Our Daughter Had CMT (Page 37) Exceptional Parent - August 2009 - August is Spinal Muscular Atrophy Awareness Month! (Page 38) Exceptional Parent - August 2009 - Newborn Screening Saves Babies, One Foot at a Time (Page 39) Exceptional Parent - August 2009 - Another Day in the Life of the National Children's Study (Page 40) Exceptional Parent - August 2009 - Another Day in the Life of the National Children's Study (Page 41) Exceptional Parent - August 2009 - Another Day in the Life of the National Children's Study (Page 42) Exceptional Parent - August 2009 - Another Day in the Life of the National Children's Study (Page 43) Exceptional Parent - August 2009 - Evidence Based Humanity Must Be Part of the Equation (Page 44) Exceptional Parent - August 2009 - Evidence Based Humanity Must Be Part of the Equation (Page 45) Exceptional Parent - August 2009 - Incontinence Education Series Part 7 (Page 46) Exceptional Parent - August 2009 - Incontinence Education Series Part 7 (Page 47) Exceptional Parent - August 2009 - Incontinence Education Series Part 7 (Page 48) Exceptional Parent - August 2009 - Emergency Preparedness Series Part 4 (Page 49) Exceptional Parent - August 2009 - Emergency Preparedness Series Part 4 (Page 50) Exceptional Parent - August 2009 - Emergency Preparedness Series Part 4 (Page 51) Exceptional Parent - August 2009 - On the Road to Recovery - Self-Deiscovery: The Crown Jewel of Psychotherapy (Page 52) Exceptional Parent - August 2009 - On the Road to Recovery - Self-Deiscovery: The Crown Jewel of Psychotherapy (Page 53) Exceptional Parent - August 2009 - On the Road to Recovery - Self-Deiscovery: The Crown Jewel of Psychotherapy (Page 54) Exceptional Parent - August 2009 - On the Road to Recovery - Self-Deiscovery: The Crown Jewel of Psychotherapy (Page 55) Exceptional Parent - August 2009 - Asperger Syndrome and the Difficulties of Diagnosing and Treating Related Conditions (Page 56) Exceptional Parent - August 2009 - Asperger Syndrome and the Difficulties of Diagnosing and Treating Related Conditions (Page 57) Exceptional Parent - August 2009 - Asperger Syndrome and the Difficulties of Diagnosing and Treating Related Conditions (Page 58) Exceptional Parent - August 2009 - Asperger Syndrome and the Difficulties of Diagnosing and Treating Related Conditions (Page 59) Exceptional Parent - August 2009 - EP Bookstore (Page 60) Exceptional Parent - August 2009 - EP Bookstore (Page 61) Exceptional Parent - August 2009 - Special Needs Alliance (Page 62) Exceptional Parent - August 2009 - Special Needs Alliance (Page 63) Exceptional Parent - August 2009 - Specialcare (Page 64) Exceptional Parent - August 2009 - Specialcare (Page 65) Exceptional Parent - August 2009 - Specialcare (Page 66) Exceptional Parent - August 2009 - Specialcare (Page 67) Exceptional Parent - August 2009 - AADMD - American Academy of Developmental Medicine and Dentistry (Page 68) Exceptional Parent - August 2009 - AADMD - American Academy of Developmental Medicine and Dentistry (Page 69) Exceptional Parent - August 2009 - AADMD - American Academy of Developmental Medicine and Dentistry (Page 70) Exceptional Parent - August 2009 - Organizational Spotlight (Page 71) Exceptional Parent - August 2009 - Organizational Spotlight (Page 72) Exceptional Parent - August 2009 - Organizational Spotlight (Page 73) Exceptional Parent - August 2009 - Living with a Disability (Page 74) Exceptional Parent - August 2009 - Living with a Disability (Page Cover3) Exceptional Parent - August 2009 - Living with a Disability (Page Cover4) http://www.eparentdigital.com/nxtbooks/exceptionalparent/201009 http://www.eparentdigital.com/nxtbooks/exceptionalparent/201008 http://www.eparentdigital.com/nxtbooks/exceptionalparent/201007 http://www.eparentdigital.com/nxtbooks/exceptionalparent/201006 http://www.eparentdigital.com/nxtbooks/exceptionalparent/201005 http://www.eparentdigital.com/nxtbooks/exceptionalparent/201004 http://www.eparentdigital.com/nxtbooks/exceptionalparent/201003 http://www.eparentdigital.com/nxtbooks/exceptionalparent/201002 http://www.eparentdigital.com/nxtbooks/exceptionalparent/2010rg http://www.eparentdigital.com/nxtbooks/exceptionalparent/200912 http://www.eparentdigital.com/nxtbooks/exceptionalparent/200911 http://www.eparentdigital.com/nxtbooks/exceptionalparent/200910 http://www.eparentdigital.com/nxtbooks/exceptionalparent/200909 http://www.eparentdigital.com/nxtbooks/exceptionalparent/200908 http://www.eparentdigital.com/nxtbooks/exceptionalparent/200907 http://www.eparentdigital.com/nxtbooks/exceptionalparent/200906 http://www.nxtbookMEDIA.com
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