Exceptional Parent - February 2010 - (Page 4) E P C O N T E N T S EP EDITORIAL ADVISORY BOARD LAUREN AGORATUS, Parent, NJ state and MCH Region II (NJ, NY, PR, VI) Coordinator for Family Voices, NJ CCAN (Caregiver Community Action Network), National Family Caregivers Association, Mercerville, NJ MARK L. BATSHAW, MD, Prof. and Chairman, Dept. of Pediatrics, The George Washington Univ. Medical Center, Washington, DC ADRIENNE FALK BERGEN, PT, Seating and Wheeled Mobility Specialist, National Seating and Mobility, Westbury, NY TOM CHEETHAM, MD, Medical Director, Orange Grove Center, Chattanooga, TN ALLEN C. CROCKER, MD, Director, Developmental Evaluation Center, Children’s Hospital, Boston, MA MAHLON DELONG, MD, Chair, Dept. of Neurology, Emory Univ., Atlanta, GA MURRAY FEINGOLD, MD, Physician-in-Chief, National Birth Defects Center, Waltham, MA LAURA FITZELL, MSW, Social Worker, Valley Infant Developmental Service, Springfield, MA CHRIS FEUDTNER, MD, PhD, Pediatrician, Division of General Pediatrics, Children’s Hospital of Philadelphia–North, Philadelphia, PA EMMETT FRANCOEUR, MDCM, FRCPC, Past President, Canadian Pediatric Society, Ottawa, ON, CAN ARNO H. FRIED, MD, FACS, Director, Pediatric Neuroscience Institute, Hackensack University Medical Center, Hackensack, NJ KAREN GAFFNEY, Advocate, Speaker, President of the Karen Gaffney Foundation, Portland, OR STANLEY I. GREENSPAN, MD, Clinical Prof. of Psychiatry and Behavioral Pediatrics, The George Washington Univ. Medical School, Washington, DC JOAN EARLE HAHN, DNSc, RN, CS, CDDN, Assistant Adjunct Prof., Univ. of California, Los Angeles School of Nursing; Past President, Developmental Disabilities Nurses Association DAVID HIRSCH, MD, Phoenix Pediatrics, Phoenix, AZ HENRY HOOD, DMD, President, American Academy of Developmental Medicine and Dentistry; Director, University of Louisville School of Dentistry, Underwood and Lee Clinic, Louisville, KY JERRY HULICK, GA Emeritus, Massachusetts Mutual Life insurance Company, Special Care Planning CHRIS P. JOHNSON, MEd, MD, FAAP Associate Prof. Pediatrics, Univ. of Texas Health Science Center, San Antonio, TX BERNARD A. KROOKS, ESQ, Littman Krooks LLP, 655 Third Ave., New York, NY 10017 JOHN H. MENKES, MD, Director of Pediatric Neurology, Cedars Sinai Medical Center. Prof. Emeritus of Neurology and Pediatrics Univ. of California, Los Angeles, CA FRANK J. MURPHY, President and CEO, EP Foundation for Education, Atlanta, GA EDWARD NEWMAN, PhD, Prof., Temple Univ. School of Social Administration, Philadelphia, PA STEVEN P. PERLMAN, DDS, MScD, DHL (Hon), Clinical Professor, Boston University, School of Dentistry, Boston, MA. HARVEY PRESSMAN, President, Corporation for Opportunity Expansion, Newton, MA SIEGFRIED M. PUESCHEL, MD, Parent, Prof. of Pediatrics, Brown Univ. School of Medicine, Providence, RI ESTHER SCHLEIFER, MSW, Clinical Social Worker, Boston, MA HOWARD SHANE, PhD, Director, Communications Enhancement Center, Children’s Hospital, Boston, MA ARTHUR SHAPIRO, EdD, Professor of Special Education, Kean University, Union, NJ MICHAEL D. SUSSMAN, MD, President, American Academy of Cerebral Palsy and Developmental Medicine, Shriner’s Hospital for Children, Portland, OR HELEN TAGER-FLUSBERG, PhD, Senior Scientist, Eunice Kennedy Shriver Ctr for Mental Retardation and Developmental Disabilities, Waltham, MA LAWRENCE T. TAFT, MD, Professor of Pediatrics, University of Medicine and Dentistry of NJ, Robert Wood Johnson Medical School, New Brunswick, NJ CAROL TINGEY, PhD, Parent, Psychologist, University of Utah Hospital, Salt Lake City, UT HAROLD TURNER, DDS, Editor Emeritus, Oral Health JO WALDRON, Parent, Disabled American for the Nation, Chief Operations Officer, New World Sounds, Inc., Fort Collins, CO LEE SHELLY WALLACE, MS, RD, LDN, FADA Chair, Dietetics in Developmental and Psychiatric Disorders (DDPD), a dietetic practice group of the American Dietetic Association. D E PA RT M E N T S 6 ANCORA IMPARO THE FOD WALK BY RICK RADER, MD, EDITOR-IN-CHIEF 8 NEW PRODUCTS 9 FURTHER READING 10 MOVIE REVIEW 11 ORGANIZATIONAL SPOTLIGHT CHILDREN’S RARE DISEASE NETWORK 12 WHAT’S HAPPENING 16 SEARCH & RESPOND 40 SPECIALCARE: GETTING —THE EFFORT PAYS OFF IN AND STAYING ORGANIZED MANY WAYS 51 AMERICAN ACADEMY OF DEVELOPMENTAL MEDICINE AND DENTISTRY (AADMD) HISPANIC/LATINO POPULATION SOCIAL AND HEALTH CONDITIONS: THE SETTING FOR CHILDREN AND ADULTS WITH DISABILITIES BY H. BARRY WALDMAN, DDS, MPH, PHD AND STEVEN P. PERLMAN, DDS, MSCD 58 SPECIAL NEEDS ALLIANCE WHEN PARENTS OF CHILDREN WITH SPECIAL NEEDS DIVORCE BY KATHERINE N. BARR 62 FAMILIES REACHING PROFESSIONALS ASK THE OCCUPATIONAL THERAPIST BY SUSAN N. SCHRIBER ORLOFF 64 LIVING WITH A DISABILITY BY JERRY LEVINSON EXCEPTIONAL PARENT (ISSN 0046-9157) is published monthly 10 times per year plus the special January Annual Resource Guide by EP Global Communications Inc., dba EXCEPTIONAL PARENT MAGAZINE, 416 Main Street, Johnstown, PA 15901. Internet address: http://www.eparent.com. All rights reserved. Copyright ©2010 by EP Global Communications Inc. EXCEPTIONAL PARENT® is a registered trademark of the EP Global Communications Inc. Postmaster: Please send address changes to: EXCEPTIONAL PARENT, P.O. Box 2078, Marion, OH 43306-2178. Periodical postage paid at Johnstown, PA and additional mailing offices (USPS 557-810). Basic annual subscription rate is $49.95 per year. Annual subscription rate for Canada is $64.95 (U.S. funds only); all other foreign countries $67.95 (U.S. funds only). Subscriber Service: Direct all inquiries & address changes to: EXCEPTIONAL PARENT, 416 Main Street, Johnstown, PA 15901. Customer Service/New Orders: E-mail: wsheehan@eparent.com or call toll free: (800) 372-7368 and ask for Customer Service, EXCEPTIONAL PARENT. Back issues incur a charge of $6.50 each and depend upon availability, call (800) 3727368. Agreement # 1420542. NOTE FROM THE EDITOR-IN-CHIEF: ADVOCATES FOR THE DIGNITY OF ALL CITIZENS WITH DISABILITIES INCLUDING THE USE OF “PEOPLE FIRST LANGUAGE” WHERE POSSIBLE. WE DO NOT NORMALLY EDIT ARTICLES AND SUBMISSIONS THAT DO NOT REFLECT THIS LANGUAGE , THEREFORE, AT TIMES, READERS MIGHT SEE ALTERNATIVE NOMENCLATURE. —Rick Rader, MD EP EXCEPTIONAL PARENT neither endorses nor guarantees any of the products or services advertised in the magazine. We strongly recommend that readers thoroughly investigate the companies and products being considered for purchase, and, where appropriate, we encourage them to consult a physician or other credentialed health professional before use and purchase. 4 February 2010 • EP MAGAZINE/www.eparent.com http://www.eparent.com http://www.eparent.com Table of Contents for the Digital Edition of Exceptional Parent - February 2010 Exceptional Parent - February 2010 Contents Ancora Imparo New Products Further Reading Movie Review Organizational Spotlight What's Happening Insight on Federal Policy. This Month's Focus: Section 504 Search & Respond The Feeding of Great Children: The Impact of Nutrition on Learning Jump with Jill - High-Energy "Rockstar Nutritionist" Jill Jayne Gets Kids Moving - And Eating Right From Diagnosis, to Life Saving Therapy, to Hollywood: The Journey of John Crowley Research Frontiers: Understanding Science, Unlocking Potential Talking Transition - An Interview with An Expert SpecialCare: Getting and Staying Organized - The Effort Pays Off in Many Ways What You Eat Can Make a Difference The Positive Impact of Specialized Diet Food Intervention: How Do I Get Started? American Academy of Developmental Medicine and Dentistry (AADMD) Who Gets to Be an Advocate? Special Needs Alliance Families Reaching Professionals Living With a Disability Exceptional Parent - February 2010 Exceptional Parent - February 2010 - Exceptional Parent - February 2010 (Page Cover1) Exceptional Parent - February 2010 - Exceptional Parent - February 2010 (Page Cover2) Exceptional Parent - February 2010 - Exceptional Parent - February 2010 (Page 1) Exceptional Parent - February 2010 - Contents (Page 2) Exceptional Parent - February 2010 - Contents (Page 3) Exceptional Parent - February 2010 - Contents (Page 4) Exceptional Parent - February 2010 - Contents (Page 5) Exceptional Parent - February 2010 - Ancora Imparo (Page 6) Exceptional Parent - February 2010 - Ancora Imparo (Page 7) Exceptional Parent - February 2010 - New Products (Page 8) Exceptional Parent - February 2010 - Further Reading (Page 9) Exceptional Parent - February 2010 - Movie Review (Page 10) Exceptional Parent - February 2010 - Organizational Spotlight (Page 11) Exceptional Parent - February 2010 - What's Happening (Page 12) Exceptional Parent - February 2010 - What's Happening (Page 13) Exceptional Parent - February 2010 - Insight on Federal Policy. This Month's Focus: Section 504 (Page 14) Exceptional Parent - February 2010 - Insight on Federal Policy. This Month's Focus: Section 504 (Page 15) Exceptional Parent - February 2010 - Search & Respond (Page 16) Exceptional Parent - February 2010 - Search & Respond (Page 17) Exceptional Parent - February 2010 - Search & Respond (Page 18) Exceptional Parent - February 2010 - Search & Respond (Page 19) Exceptional Parent - February 2010 - The Feeding of Great Children: The Impact of Nutrition on Learning (Page 20) Exceptional Parent - February 2010 - The Feeding of Great Children: The Impact of Nutrition on Learning (Page 21) Exceptional Parent - February 2010 - Jump with Jill - High-Energy "Rockstar Nutritionist" Jill Jayne Gets Kids Moving - And Eating Right (Page 22) Exceptional Parent - February 2010 - Jump with Jill - High-Energy "Rockstar Nutritionist" Jill Jayne Gets Kids Moving - And Eating Right (Page 23) Exceptional Parent - February 2010 - From Diagnosis, to Life Saving Therapy, to Hollywood: The Journey of John Crowley (Page 24) Exceptional Parent - February 2010 - From Diagnosis, to Life Saving Therapy, to Hollywood: The Journey of John Crowley (Page 25) Exceptional Parent - February 2010 - From Diagnosis, to Life Saving Therapy, to Hollywood: The Journey of John Crowley (Page 26) Exceptional Parent - February 2010 - From Diagnosis, to Life Saving Therapy, to Hollywood: The Journey of John Crowley (Page 27) Exceptional Parent - February 2010 - From Diagnosis, to Life Saving Therapy, to Hollywood: The Journey of John Crowley (Page 28) Exceptional Parent - February 2010 - From Diagnosis, to Life Saving Therapy, to Hollywood: The Journey of John Crowley (Page 29) Exceptional Parent - February 2010 - Research Frontiers: Understanding Science, Unlocking Potential (Page 30) Exceptional Parent - February 2010 - Research Frontiers: Understanding Science, Unlocking Potential (Page 31) Exceptional Parent - February 2010 - Research Frontiers: Understanding Science, Unlocking Potential (Page 32) Exceptional Parent - February 2010 - Research Frontiers: Understanding Science, Unlocking Potential (Page 33) Exceptional Parent - February 2010 - Research Frontiers: Understanding Science, Unlocking Potential (Page 34) Exceptional Parent - February 2010 - Research Frontiers: Understanding Science, Unlocking Potential (Page 35) Exceptional Parent - February 2010 - Research Frontiers: Understanding Science, Unlocking Potential (Page 36) Exceptional Parent - February 2010 - Talking Transition - An Interview with An Expert (Page 37) Exceptional Parent - February 2010 - Talking Transition - An Interview with An Expert (Page 38) Exceptional Parent - February 2010 - Talking Transition - An Interview with An Expert (Page 39) Exceptional Parent - February 2010 - SpecialCare: Getting and Staying Organized - The Effort Pays Off in Many Ways (Page 40) Exceptional Parent - February 2010 - SpecialCare: Getting and Staying Organized - The Effort Pays Off in Many Ways (Page 41) Exceptional Parent - February 2010 - SpecialCare: Getting and Staying Organized - The Effort Pays Off in Many Ways (Page 42) Exceptional Parent - February 2010 - SpecialCare: Getting and Staying Organized - The Effort Pays Off in Many Ways (Page 43) Exceptional Parent - February 2010 - What You Eat Can Make a Difference (Page 44) Exceptional Parent - February 2010 - What You Eat Can Make a Difference (Page 45) Exceptional Parent - February 2010 - The Positive Impact of Specialized Diet (Page 46) Exceptional Parent - February 2010 - The Positive Impact of Specialized Diet (Page 47) Exceptional Parent - February 2010 - The Positive Impact of Specialized Diet (Page 48) Exceptional Parent - February 2010 - Food Intervention: How Do I Get Started? (Page 49) Exceptional Parent - February 2010 - Food Intervention: How Do I Get Started? (Page 50) Exceptional Parent - February 2010 - American Academy of Developmental Medicine and Dentistry (AADMD) (Page 51) Exceptional Parent - February 2010 - American Academy of Developmental Medicine and Dentistry (AADMD) (Page 52) Exceptional Parent - February 2010 - American Academy of Developmental Medicine and Dentistry (AADMD) (Page 53) Exceptional Parent - February 2010 - American Academy of Developmental Medicine and Dentistry (AADMD) (Page 54) Exceptional Parent - February 2010 - American Academy of Developmental Medicine and Dentistry (AADMD) (Page 55) Exceptional Parent - February 2010 - Who Gets to Be an Advocate? (Page 56) Exceptional Parent - February 2010 - Who Gets to Be an Advocate? (Page 57) Exceptional Parent - February 2010 - Special Needs Alliance (Page 58) Exceptional Parent - February 2010 - Special Needs Alliance (Page 59) Exceptional Parent - February 2010 - Special Needs Alliance (Page 60) Exceptional Parent - February 2010 - Special Needs Alliance (Page 61) Exceptional Parent - February 2010 - Families Reaching Professionals (Page 62) Exceptional Parent - February 2010 - Families Reaching Professionals (Page 63) Exceptional Parent - February 2010 - Living With a Disability (Page 64) http://www.eparentdigital.com/nxtbooks/exceptionalparent/201009 http://www.eparentdigital.com/nxtbooks/exceptionalparent/201008 http://www.eparentdigital.com/nxtbooks/exceptionalparent/201007 http://www.eparentdigital.com/nxtbooks/exceptionalparent/201006 http://www.eparentdigital.com/nxtbooks/exceptionalparent/201005 http://www.eparentdigital.com/nxtbooks/exceptionalparent/201004 http://www.eparentdigital.com/nxtbooks/exceptionalparent/201003 http://www.eparentdigital.com/nxtbooks/exceptionalparent/201002 http://www.eparentdigital.com/nxtbooks/exceptionalparent/2010rg http://www.eparentdigital.com/nxtbooks/exceptionalparent/200912 http://www.eparentdigital.com/nxtbooks/exceptionalparent/200911 http://www.eparentdigital.com/nxtbooks/exceptionalparent/200910 http://www.eparentdigital.com/nxtbooks/exceptionalparent/200909 http://www.eparentdigital.com/nxtbooks/exceptionalparent/200908 http://www.eparentdigital.com/nxtbooks/exceptionalparent/200907 http://www.eparentdigital.com/nxtbooks/exceptionalparent/200906 http://www.nxtbookMEDIA.com
For optimal viewing of this digital publication, please enable JavaScript and then refresh the page. If you would like to try to load the digital publication without using Flash Player detection, please click here.