Exceptional Parent - February 2010 - (Page 54) AADMD • Hispanic/Latino Population Social and Health Conditions continued from page 53 • Hispanic children have lower rates of coverage with full series of vaccinations.13 • Hispanic children suffer disproportionately from being overweight and having asthma. Hispanic boys are the most overweight and Hispanic girls are the second most overweight of all U.S. children.9 • Low income and minority children have more dental cavities.14 However, a smaller proportion of Hispanic children, than nonHispanic white children, visited in a dentist in the past year. Mexican-American children were least likely to have a reported dental visit in the past year. A greater proportion of Hispanic children and adults (in particular, Mexican-Americans) had unmet dental care needs due to costs.15 “(These)… disparities can mean decreased quality of life, loss of economic opportunities, and perceptions of injustice.”10 As noted previously, the Census Bureau estimates that there will be more than one hundred million Hispanic residents by mid century. If this population continues to experience poorer health conditions, this expected demographic change would magnify the adverse economic, social and health impact of these differences between racial/ethnic populations. NOW ADD DISABILITIES At this point, add the complications of children (and adults) with disabilities as native and foreign-born Hispanic youngsters and their families attempt to overcome the barriers of culture, economics, lack of health insurance, the availability of health services, and language. Results from the 2000 Census indicated that 2.5 million Hispanic families (one-third of all Hispanic families) had a member with a disability. More than half of a million of these Hispanic families were living in poverty, including 420,000 families with children. One-in-ten Hispanic families with children reported raising children with a disability.16 Approximately 1.2 million Hispanic children with special health care needs (SHCNs) were reported by the 2001 National Survey of Children with SHCNs.17 Nationally, 8.6% of Hispanic children were reported to have SHCNs; ranging from 6% in Georgia and Idaho, to more than 20% in Louisiana and Vermont. The proportion of Hispanic children with SHCNs is in the lower range of other ethnic and racial groups. However, Hispanic children are particularly vulnerable (as a consequence of the extent of poverty, lack of health insurance and language barrier) to the limited availability of health services. Nevertheless, every type of disability that is found in the general population also can be found in the Hispanic population; often at greater rates of proportion. • Hispanic and non-Hispanic black parents of children with special health care needs are twice as likely as non-Hispanic white parents to be dissatisfied with their child’s care. Over one-third of these minority population parents reported problems with using health care services. Parental interview language was the key factor in Hispanic parent’s dissatisfaction. “The marked racial/ethnic disparities in dissatisfaction with care and problems with ease of service use may reflect frequently inadequate healthcare facilities and systems of care for minority (children) with SHCNs.”18 • Youngsters with SHCNs grow up to adulthood and must pass through the difficult transitional teen years. Results from a national study of children with SHCNs emphasized the particularly limited attention to this transitional period. Many factors contribute to this observation, including 1) the only recent recognition of the need for transition planning, and 2) both providers and families may be reluctant to end a long-standing therapeutic relationship that has been established over the course of the child’s life. In addition, appropriately trained adult-oriented providers are either not available or are unwilling to see young adults with chronic childhood conditions. Contributing to this problem may be the relatively high proportion of individuals who lack insurance (or are under insured) in the young-adult population.19 For example, Medicaid dental services are elective for adults. In most states adult services are limited to the elimination of infection and relief of pain. Essentially, youngsters with SHCNs “age out of dental care.”20 • In reality, dental care is the most prevalent unmet health care need for children with SHCNs, affecting substantially more children than any other health care category.21 (See a previous presentation in EP magazine for a review of the impact on needed dental services.[22]) DIRECTIONS Is there any answer to provide needed services for young and the not so young Hispanics with disabilities residing in family settings that may be quite different from those about which many health providers have limited awareness and experience? Maybe the answer lies in the process that we as authors followed in an earlier presentation on the somewhat similar difficulties faced in providing health services for Native Americans; especially those with disabilities.23 The more we read, the more we recognized how little we knew. The needed direction may well be an increasing effort to tell the story of Hispanic/Latino Americans with disabilities. Just as we learned, so too the necessary direction may well be to reach the general public and health practitioners with the situation and needs of this underserved population. • H. Barry Waldman, DDS, MPH, PhD is a Distinguished Teaching Professor in the Department of General Dentistry at Stony Brook University, in NY. Steven P. Perlman, DDS, MScD is the Global Clinical Director, Special Olympics, Special Smiles and Associate Clinical Professor of Pediatric Dentistry at The Boston University Goldman School of Dental Medicine. He also has a private pediatric dentistry practice in Lynn, MA. 54 February 2010 • EP MAGAZINE/www.eparent.com http://www.eparent.com Table of Contents for the Digital Edition of Exceptional Parent - February 2010 Exceptional Parent - February 2010 Contents Ancora Imparo New Products Further Reading Movie Review Organizational Spotlight What's Happening Insight on Federal Policy. This Month's Focus: Section 504 Search & Respond The Feeding of Great Children: The Impact of Nutrition on Learning Jump with Jill - High-Energy "Rockstar Nutritionist" Jill Jayne Gets Kids Moving - And Eating Right From Diagnosis, to Life Saving Therapy, to Hollywood: The Journey of John Crowley Research Frontiers: Understanding Science, Unlocking Potential Talking Transition - An Interview with An Expert SpecialCare: Getting and Staying Organized - The Effort Pays Off in Many Ways What You Eat Can Make a Difference The Positive Impact of Specialized Diet Food Intervention: How Do I Get Started? American Academy of Developmental Medicine and Dentistry (AADMD) Who Gets to Be an Advocate? Special Needs Alliance Families Reaching Professionals Living With a Disability Exceptional Parent - February 2010 Exceptional Parent - February 2010 - Exceptional Parent - February 2010 (Page Cover1) Exceptional Parent - February 2010 - Exceptional Parent - February 2010 (Page Cover2) Exceptional Parent - February 2010 - Exceptional Parent - February 2010 (Page 1) Exceptional Parent - February 2010 - Contents (Page 2) Exceptional Parent - February 2010 - Contents (Page 3) Exceptional Parent - February 2010 - Contents (Page 4) Exceptional Parent - February 2010 - Contents (Page 5) Exceptional Parent - February 2010 - Ancora Imparo (Page 6) Exceptional Parent - February 2010 - Ancora Imparo (Page 7) Exceptional Parent - February 2010 - New Products (Page 8) Exceptional Parent - February 2010 - Further Reading (Page 9) Exceptional Parent - February 2010 - Movie Review (Page 10) Exceptional Parent - February 2010 - Organizational Spotlight (Page 11) Exceptional Parent - February 2010 - What's Happening (Page 12) Exceptional Parent - February 2010 - What's Happening (Page 13) Exceptional Parent - February 2010 - Insight on Federal Policy. This Month's Focus: Section 504 (Page 14) Exceptional Parent - February 2010 - Insight on Federal Policy. This Month's Focus: Section 504 (Page 15) Exceptional Parent - February 2010 - Search & Respond (Page 16) Exceptional Parent - February 2010 - Search & Respond (Page 17) Exceptional Parent - February 2010 - Search & Respond (Page 18) Exceptional Parent - February 2010 - Search & Respond (Page 19) Exceptional Parent - February 2010 - The Feeding of Great Children: The Impact of Nutrition on Learning (Page 20) Exceptional Parent - February 2010 - The Feeding of Great Children: The Impact of Nutrition on Learning (Page 21) Exceptional Parent - February 2010 - Jump with Jill - High-Energy "Rockstar Nutritionist" Jill Jayne Gets Kids Moving - And Eating Right (Page 22) Exceptional Parent - February 2010 - Jump with Jill - High-Energy "Rockstar Nutritionist" Jill Jayne Gets Kids Moving - And Eating Right (Page 23) Exceptional Parent - February 2010 - From Diagnosis, to Life Saving Therapy, to Hollywood: The Journey of John Crowley (Page 24) Exceptional Parent - February 2010 - From Diagnosis, to Life Saving Therapy, to Hollywood: The Journey of John Crowley (Page 25) Exceptional Parent - February 2010 - From Diagnosis, to Life Saving Therapy, to Hollywood: The Journey of John Crowley (Page 26) Exceptional Parent - February 2010 - From Diagnosis, to Life Saving Therapy, to Hollywood: The Journey of John Crowley (Page 27) Exceptional Parent - February 2010 - From Diagnosis, to Life Saving Therapy, to Hollywood: The Journey of John Crowley (Page 28) Exceptional Parent - February 2010 - From Diagnosis, to Life Saving Therapy, to Hollywood: The Journey of John Crowley (Page 29) Exceptional Parent - February 2010 - Research Frontiers: Understanding Science, Unlocking Potential (Page 30) Exceptional Parent - February 2010 - Research Frontiers: Understanding Science, Unlocking Potential (Page 31) Exceptional Parent - February 2010 - Research Frontiers: Understanding Science, Unlocking Potential (Page 32) Exceptional Parent - February 2010 - Research Frontiers: Understanding Science, Unlocking Potential (Page 33) Exceptional Parent - February 2010 - Research Frontiers: Understanding Science, Unlocking Potential (Page 34) Exceptional Parent - February 2010 - Research Frontiers: Understanding Science, Unlocking Potential (Page 35) Exceptional Parent - February 2010 - Research Frontiers: Understanding Science, Unlocking Potential (Page 36) Exceptional Parent - February 2010 - Talking Transition - An Interview with An Expert (Page 37) Exceptional Parent - February 2010 - Talking Transition - An Interview with An Expert (Page 38) Exceptional Parent - February 2010 - Talking Transition - An Interview with An Expert (Page 39) Exceptional Parent - February 2010 - SpecialCare: Getting and Staying Organized - The Effort Pays Off in Many Ways (Page 40) Exceptional Parent - February 2010 - SpecialCare: Getting and Staying Organized - The Effort Pays Off in Many Ways (Page 41) Exceptional Parent - February 2010 - SpecialCare: Getting and Staying Organized - The Effort Pays Off in Many Ways (Page 42) Exceptional Parent - February 2010 - SpecialCare: Getting and Staying Organized - The Effort Pays Off in Many Ways (Page 43) Exceptional Parent - February 2010 - What You Eat Can Make a Difference (Page 44) Exceptional Parent - February 2010 - What You Eat Can Make a Difference (Page 45) Exceptional Parent - February 2010 - The Positive Impact of Specialized Diet (Page 46) Exceptional Parent - February 2010 - The Positive Impact of Specialized Diet (Page 47) Exceptional Parent - February 2010 - The Positive Impact of Specialized Diet (Page 48) Exceptional Parent - February 2010 - Food Intervention: How Do I Get Started? (Page 49) Exceptional Parent - February 2010 - Food Intervention: How Do I Get Started? (Page 50) Exceptional Parent - February 2010 - American Academy of Developmental Medicine and Dentistry (AADMD) (Page 51) Exceptional Parent - February 2010 - American Academy of Developmental Medicine and Dentistry (AADMD) (Page 52) Exceptional Parent - February 2010 - American Academy of Developmental Medicine and Dentistry (AADMD) (Page 53) Exceptional Parent - February 2010 - American Academy of Developmental Medicine and Dentistry (AADMD) (Page 54) Exceptional Parent - February 2010 - American Academy of Developmental Medicine and Dentistry (AADMD) (Page 55) Exceptional Parent - February 2010 - Who Gets to Be an Advocate? (Page 56) Exceptional Parent - February 2010 - Who Gets to Be an Advocate? (Page 57) Exceptional Parent - February 2010 - Special Needs Alliance (Page 58) Exceptional Parent - February 2010 - Special Needs Alliance (Page 59) Exceptional Parent - February 2010 - Special Needs Alliance (Page 60) Exceptional Parent - February 2010 - Special Needs Alliance (Page 61) Exceptional Parent - February 2010 - Families Reaching Professionals (Page 62) Exceptional Parent - February 2010 - Families Reaching Professionals (Page 63) Exceptional Parent - February 2010 - Living With a Disability (Page 64) http://www.eparentdigital.com/nxtbooks/exceptionalparent/201009 http://www.eparentdigital.com/nxtbooks/exceptionalparent/201008 http://www.eparentdigital.com/nxtbooks/exceptionalparent/201007 http://www.eparentdigital.com/nxtbooks/exceptionalparent/201006 http://www.eparentdigital.com/nxtbooks/exceptionalparent/201005 http://www.eparentdigital.com/nxtbooks/exceptionalparent/201004 http://www.eparentdigital.com/nxtbooks/exceptionalparent/201003 http://www.eparentdigital.com/nxtbooks/exceptionalparent/201002 http://www.eparentdigital.com/nxtbooks/exceptionalparent/2010rg http://www.eparentdigital.com/nxtbooks/exceptionalparent/200912 http://www.eparentdigital.com/nxtbooks/exceptionalparent/200911 http://www.eparentdigital.com/nxtbooks/exceptionalparent/200910 http://www.eparentdigital.com/nxtbooks/exceptionalparent/200909 http://www.eparentdigital.com/nxtbooks/exceptionalparent/200908 http://www.eparentdigital.com/nxtbooks/exceptionalparent/200907 http://www.eparentdigital.com/nxtbooks/exceptionalparent/200906 http://www.nxtbookMEDIA.com
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